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Journal & Clinical Information IVIG Fourndations and Associations IVIg Manufacturers

bulletMultiple Sclerosis (MS)
bulletMyasthenia Gravis (MG)
bulletMyositis
bulletChronic Inflammatory Demyelinating Polyneuropathy (CIDP)
bulletGuillain-Barre Syndrome (GBS)
bulletITP (Idiopathic Thrombocytopenic Pupura)

bulletKawasaki Disease
bulletMitochondrial Disease
bulletMultifocal Motor Neuropathy (MMN)
bulletPemphigus and Pemphigoid
bulletPrimary Immune Deficiency Disease (PIDD)
bulletStiff-Person Syndrome (SPS)
bulletOthers

 


 

Multiple Sclerosis (MS)

bulletMultiple Sclerosis Foundation
(www.msfacts.org)
A predominantly service-based, non-profit organization, with a primary mission to ensure the best quality of life for those coping with MS by providing comprehensive support and educational programs.

bulletNational Multiple Sclerosis Society
(www.nationalmssociety.org)
The Society and its network of chapters nationwide promote research, educate, advocate on critical issues, and organize a wide range of programs—including support for the newly diagnosed and those living with MS over time.

bulletAll About Multiple Sclerosis
(www.mult-sclerosis.org)
This website provides accurate and comprehensive medical information written in plain English by people living with multiple sclerosis.


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Myasthenia Gravis (MG)

bulletMyasthenia Gravis Foundation of America, Inc.
(www.myasthenia.org)
The mission of the foundation is to facilitate the timely diagnosis and optimal care of individuals affected by myasthenia gravis and closely related disorders and to improve their lives through programs of patient services, public information, medical research, professional education, advocacy and patient care.

bulletMyasthenia Gravis Fact Sheet
(www.ninds.nih.gov/disorders/myasthenia_gravis/myasthenia_gravis.htm)
A fact sheet prepared by the National Institute of Neurological Disorders and Stroke.

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Myositis

bulletThe Myositis Association
(www.myositis.org)
A web site with current, easy-to-understand information about the inflammatory myopathies for you, your family, and your doctor; including a community forum, newsletters and additional resources.

bulletInternational Myositis Assessment and Clinical Studies Group
(https://dir-apps.niehs.nih.gov/imacs/index.cfm?action=home.main)
(www.niehs.nih.gov/research/resources/collab/imacs/main.cfm)
A website supported through a coalition of healthcare providers and researchers providing improved treatments and disease understanding.

bulletThe Cure Juvenile Myositis Foundation
(www.curejm.com)
This foundation was created with the a specific goal of finding a cure for juvenile mysositis along with providing support and information for families.


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Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)

bulletNeuropathy Association
(www.neuropathy.org)
Information and support provided to assist with understanding this neurological disorder and how to cope with it.

bulletCIDP Fact Sheet
(www.ninds.nih.gov/disorders/cidp)
A fact sheet prepared by the National Institute of Neurological Disorders and Stroke.

bulletCIDP Organization of The USA
(www.cidpusa.org/ivig.html)
This site is created to help teach patients where to find resources and help if you have autoimmune diseases.

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Guillain-Barre Syndrome (GBS)

bulletGBS Fact Sheet
(www.ninds.nih.gov/disorders/gbs/detail_gbs.htm)
A fact sheet prepared by the National Institute of Neurological Disorders and Stroke.

bulletMayo Clinic
(www.mayoclinic.com/health/guillain-barre-syndrome/DS00413)
A comprehensive overview of GBS from a reputable source.

bulletGBS Foundation
(www.gbs-cidp.org)
A comprehensive website providing any and all information on GBS along with access to forums which provide the opportunity to talk to other patients and learn more about ways to manage the illness.

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ITP (Idiopathic Thrombocytopenic Pupura)

bulletPlatelet Disorder Support Association
(www.pdsa.org)
Discussion groups, treatment information and general information on ITP.

bulletNational Heart, Lung and Blood Institute
(www.nhlbi.nih.gov/health/dci/Diseases/Itp/ITP_WhatIs.html)


Kawasaki Disease

bulletKawasaki Disease Foundation
(www.kdfoundation.org)


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Mitochondrial Disease

bulletUnited Mitochondrial Disease Foundation
(www.umdf.org)
This foundation promotes the research and education for the diagnosis, treatment and cure of mitochondrial disorders and provides support for individuals and families affected by it.


Multifocal Motor Neuropathy (MMN)

bulletMMN Fact Sheet
(www.ninds.nih.gov/disorders/multifocal_neuropathy/multifocal_neuropathy.htm)
A fact sheet prepared by the National Institute of Neurological Disorders and Stroke.

bulletMMN Center at Johns Hopkins Department of Neurology
(www.neuro.jhmi.edu/MMN)

bulletThe Neuropathy Association
(www.neuropathy.org)
This association is dedicated to helping those with conditions affecting peripheral nerves.

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Pemphigus and Pemphigoid

bulletInternational Pemphigus Foundation
(www.pemphigus.org)
The International Pemphigus Foundation is dedicated to providing information and support to the community of people living with the rare autoimmune skin diseases pemphigus and pemphigoid.

bulletNational Institutes of Health
(www.niams.nih.gov/Health_Info/Pemphigus/default.asp)

bulletNational Institute of Arthritis and Musculoskeletal and Skin Diseases
(www.niams.nih.gov)
NIAMS supports research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases, the training of basic and clinical scientists to carry out this research, and the dissemination of information on research progress in these diseases.

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Peripheral Neuropathy (PN)

bulletThe Neuropathy Association
(www.neuropathy.org)
This association is dedicated to helping those with conditions affecting peripheral nerves.

bulletPN Fact Sheet
(www.ninds.nih.gov/disorders/peripheralneuropathy/peripheralneuropathy.htm)
Learn more about PN, how it is classified, the symptoms, causes and treatments.

bulletThe Neuropathy Action Foundation
(www.neuropathyaction.org)
A foundation designed to empower, educate and inform patients and physicians about neuropathy.

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Primary Immune Deficiency Disease (PIDD)

bulletAmerican Academy of Allergy, Asthma and Immunology
(www.aaaai.org)
The website contains resources for consumers and professionals.

bulletImmune Deficiency Foundation (IDF)
(www.primaryimmune.org)
This foundation is dedicated to improving the diagnosis and treatment of PIDD through research and education.

bulletNational Institute of Allergy and Infectious Diseases
(www.niaid.nih.gov/default.htm)
The National Institute of Allergy and Infectious Diseases (NIAID) conducts and supports basic and applied research to better understand, treat, and ultimately prevent infectious, immunologic, and allergic diseases.

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Stiff-Person Syndrome (SPS)

bulletAmerican Autoimmune Related Diseases Association, Inc.
(www.aarda.org)
The American Autoimmune Related Diseases Association is dedicated to the eradication of autoimmune diseases and the alleviation of suffering and the socioeconomic impact of autoimmunity through fostering and facilitating collaboration in the areas of education, research, and patient services in an effective, ethical and efficient manner.

bulletNational Organization of Rare Disorders, Inc.
(www.rarediseases.org)
A unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them.

bulletNational Institute of Neurological Disorders and Stroke
(www.ninds.nih.gov/disorders/stiffperson/stiffperson.htm)
Comprehensive information sheet with diagnosis, signs and symptoms and treatment options available.

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Others

bulletThe Arthritis Foundation
(www.arthritis.org)
A comphrensive set of resources for those diagnosed with arthritis.

bulletThe Lupus Foundation of America
(www.lupus.org)
With more than 200 chapters, branches and support groups in 30 states, the Lupus Foundation of America (LFA) is the nation's leading non-profit voluntary health organization dedicated to finding the causes and cure for lupus.

bulletNational Institute of Neurological Disorders and Stroke
(www.ninds.nih.gov)
The National Institute of Neurological Disorders and Stroke (NINDS) conducts and supports research on brain and nervous system disorders. This site offers extensive information on neurological disorders, news, events and research.

bulletAmerican Academy of Neurology
(www.aan.com/professionals)
The American Academy of Neurology (AAN) provides valuable resources for medical specialists worldwide who are committed to improving the care of patients with neurological diseases.

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